Well it has definitely been a listless few weeks, sleep is still very hit and miss, mostly misses, in that I am experiencing a lot of it broken sleep. I am not to sure if my unconscious mind is playing games with me but it is definitely hard to switch it off. I wonder if it … More Not quite feeling a 100%
The last few weeks has very definitely been about friendship, and I am very lucky with mine. It all started with a lunch in Telford with my partner in crime from work, Teresa. Although I am a regular visitor to see my old work colleagues, its not often that we get some time to ourselves. … More Friendship is precious
Last September I saw a personal trainer at the gym in attempt to find a form of exercise I could do to supplement my walking and swimming, that would not upset my guts. We had a quite in-depth discussion where I did my best to explain my problems and what my limitations were. After which I … More Sometimes it’s just a matter of confidence
We all love a holiday, and we have just come back from one of the best holidays, ever. After the majority of August being wiped out I was looking forward to some fun, good company, food and a few glasses of wine. So on Friday 26th August we packed up the car, put the bikes … More Holidays and Energy
Following on from my last blog, my hope of things improving quickly didn’t really materialise. Although the Christie and myself were in agreement that it was probably the antibiotics that had helped to screw things up. So as there seemed to be no let up in my symptoms, arrangements were made for me to go in … More Not quite as in control as I think…
Well I wasn’t expecting that. After my last blog I finished my third set of anitibiotics and within a day embarked on my fourth lot after a visit to the GP. She also checked my records and it turns out that this was my fourth urine infection since April, so decided to send me for a renal scan … More Knocked for Six
This time last year I officially became a blogger, never saw that coming, then again I never expected to be living with a rare cancer diagnosis either. Thankfully though I am in a lot better place now than I was this time last year, and all things considered it hasn’t been too bad a year. … More Life in the Fast Lane
Hard to believe where the time has gone, but on the 22nd June 2015 we received my diagnosis. That is definitely one day I will never forget, the feelings of shock and disbelief, but also the relief that there was a valid reason for the way I have felt for years. It wasn’t all in my … More The First Anniversary of my Diagnosis
It’s been a busy and interesting month, starting with us finally getting the decorator booked to do the hall, stairs, landing and downstairs loo. Had to change our ideas about a few things, and I still can’t find a wallpaper that we both agree on!! There is so much on offer out there, but boy … More Everyday Life and making new friends
Another great blog from Ronny Allan paying tribute to all the fantastic nurses out there, keeping us going from day to day Ronny Allan – Living with Neuroendocrine Cancer I had minimal exposure to nurses throughout the first 55 years of my life. I did spend a night in hospital when I was 16 having … More Always thank your Nurse – sometimes they’re the only one between you and a hearse!
Happy to report that the visit to the see the surgeon went well, Dr Fulford was a lovely guy and went through everything with us, explaining what the options are and the risks. We even got to see my CT scan and view my resident aliens, he even drew a diagram showing their positions, didn’t sign … More Still Learning
Its been a tiring and uncomfortable few weeks, and I am not to sure what the actual cause is, or if in fact it can be put down to any one thing. Partly I think it is down to the higher dose for my injection, it took me a good few months to get used … More Still lots to learn!
I cannot believe that we are half way through March already, and how busy my life is. Following my initial visit to the Christie at the beginning of February I have already been back three times, and have another 3 visits over the coming weeks. However, once all the tests and results are out of … More Moving forward
On the 24th January I celebrated my birthday, my 54th year on this earth my first one with cancer, and as a grandma; and on the day itself it felt no different to any other, which was good. In fact I had a lovely time, out for a meal with family and friends the night … More Birthdays and Consultations