Where has the time gone, I cannot believe that it is just over 5 weeks since I had my first PRRT. So in this blog I will describe how it has been for me over the last few weeks, starting with what happened on treatment day. Please be aware that this is based on my … More My First Round of PRRT (Peptide Receptor Radionuclide Therapy)
A few days after I published my last blog on the 22ndJune I got a call from my consultant to give me an update on my gallium scan results. it confirmed beyond any reasonable doubt that there has been some progression with my primary in my small intestine, as well as the lymph node that … More More Results and Getting Ready to Start a New Part of my Journey
So it was finally time, and I must admit that excitement was starting to get the better of me. So hold onto to your hats as there are lots of photo’s and links for you. After my scans and blood tests on the 18th April it was time for me to get my act together, … More Retreats and Results
After a pretty miserable start to the year, things now seem to be more settled. The cough from my cold has finally gone, and my energy levels appear to be lasting longer. Although I have also accepted the fact finally (I think), that my stamina levels are never going to be what they used to … More Out and About – Just for a change;-)
Well the cold has finally cleared up, but it left me with a nagging cough for a few weeks afterwards, and my ventolin use was higher than it has been for years. So my intention not to leave to big a gap when it came to my blog got scuppered, not many pictures either. I … More The Up’s and Down’s of Life
Getting the New Year off to a good start the Rambling Potters did their 3rd annual walk for the NET Patient Foundation on Saturday 6th January. We had a great turn out, the weather was cold and bright if a little muddy thanks to rain on the previous two days, but for us it stayed … More January wasn’t to bad!
I would like to start my first blog of the year by wishing you all a happy and healthy 2018 and personally saying good riddance to 2017, I am not sorry at all to see the back of it. Although there have been some great high points, physically and emotionally it was not a good … More Hello 2018 and Good-bye 2017
Boy time really does fly, before you know it 6 weeks has disappeared and you realise that you haven’t done your blog. I have not been lazy as such, more distracted by other things; my social media profile has been also been very quiet too. In fact I would go as far as to say … More Tempus Fugit!
Happy to report that our new family member Buddy has fitted right in, and it feels like we have had him for ever. To all intents and purposes he is your typical Labrador, loves a fuss, likes lots of sleep, has lots of energy when he is awake and loves to play. Food is a … More Settling in our new companion,and a new floor
Happy to report that my reliance on the painkillers and heat-packs over the last few weeks has reducing and some of my energy is returning. I am down to one dose a day most days, and have even been getting a few days pain relief free. I haven’t had a free ride however, but things … More Feeling Better and a New Family Member
It’s been a while since my last blog, but it has been a very busy and tiring time, involving a sponsored walk, a big family holiday, and a holiday recovery period that took longer than intended, or indeed expected! So it’s taken me a while to get going again, it’s a bit of a long one, but … More The Big Canadian Family Holiday:-)
My back continues to creak but the yoga is definitely helping to ease thing and keep me flexible, and my balance is improving as I can now stand on one leg in the shower without falling over. Good deep sleep remains consistently unreliable, although I have found that lavender oil is definitely helping. I had … More Good Company
It has been an uncomfortable few weeks, but boy has it flown, it is hard to believe that Easter has been and gone, we have had our first May bank holiday and are quickly heading towards our next one at the end of the month. We had a lovely Easter, starting with another friends 50th … More Getting on With It
Writer, Editor & Blogger
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expressing our experiences through the power of art
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Kath Lewis 