Today, 4th February, is international ‘Rare Cancer’ day… 11 years and 4 months ago I am sorry to say that I didn’t know that ‘Rare Cancer’ day existed. 11 years and 4 months ago I had never heard of neuroendocrine cancer either, a lot has changed since then. If any of you are familiar with my blogs, although … More 11 Years & 4 months ago My Rare Cancer Journey Began
The longer we can live with neuroendocrine cancer, the more resilient we need to become. ‘Resilient’ … what a great word, but what does it really mean? According to the Oxford English Dictionary: The capacity to withstand or to recover quickly from difficulties; toughness My favourite description though is from the American Psychological Association: Resilience … More Living with Long-Term Uncertainty – 10 years and Counting
7 years and 100 butt jabs later I am still here, who would have thought it. Definitely not me… I have been very lax with my blogs, and I am sorry for being quiet for so long. I have posted a few articles that I have written for Neuroendocrine Cancer UK (NCUK) with a focus on how … More 7 years and 100 Jabs Later
The emotional impact of living with a long term cancer diagnosis can impact our lives in so many different ways, and I think it is important to not be to hard on ourselves. Easier said than done I know… Even though I have been quiet with my usual blogs I have been writing occasional pieces … More Remember – You are Still You💜
As well as dealing with your own diagnosis, and trying to understand what this now means for you as a person, you then have to tell those closest to you and deal with their reactions, which can come in many forms. Not only do you have lot to process; it is a heavy weight to … More Guilty as Charged
This is an article I wrote at the end of last year as part of my role as an ambassador for Neuroendocrine Cancer UK (NCUK). So I thought I would share on here as well. I received my diagnosis of ‘Watch and Wait’ in June 2015, following surgery to try to remove a growth that … More Watching & Waiting – it’s not just about the Cancer
I cannot believe that a year has gone by, and what a year it has been for the whole world. There were many times over the last 12months that I intended to write a blog, but the words would just not come, or I was not in the right place to write. As I am … More 6th Anniversary of Living with Neuroendocrine Cancer
Saturday 20th June is the 5th anniversary of my Neuroendocrine Cancer diagnosis, and I am very thankful that I am still here very much alive and kicking; if somewhat a bit quiet of late. I am shocked to discover that I have not written anything for 6 months, but I just couldn’t bring myself to … More 5th Anniversary of Living with Neuroendocrine Cancer
After my last post, the fast pace and travel continued for a few a weeks more, which has been great fun but also challenging. I have done two more presentations, a coffee morning to raise funds morning for the NET Patient Foundation and some publicity to promote the services of the Penny Brohnn cancer charity. … More Sharing My Story and Getting on Top of the Pain
Time flies when your having fun, and I certainly have been, my feet have hardly hit the ground for longer than a few days since my last blog, hence the title. It’s been mad, literally, talk about making up for lost time… After spending a good few months on my backside before, during and after my … More Trains, Planes & Automobiles and finishing with a bit of Cher
Following on from my last blog there has been a bit of a bigger gap than usual, and I have no valid excuse for that. Life has been jogging along at a nice pace, but the words just wouldn’t come. There have been a few times over the last couple of months that I have … More Riding the Wave and YAY to PRRT
Well it has been a strange and busy couple of months, lots of ups and downs, hence my lack of blogging, as I have had little time or energy to write anything other than a few lines in my journal each day. There has been a lot of socializing, travelling, getting to meet online friends … More 4 Years and Counting; Some Hello’s and a Very Sad Goodbye
The last month has been a combination of busy and quiet as I work on getting some of my stamina back after completing my PRRT. The week after my last blog I got my first proper set of results, which look promising. It was a great relief to hear that everything remains stable, and that … More First Set of Post PRRT Results and a Sponsored Walk
Hi everybody, another big gap I know, but hopefully I am now getting back on track. Since I last posted we have had the Christmas holidays, celebrated a new Year, I have had my 4thPRRT treatment, and celebrated my birthday. Which by the way was my 4thbirthday since my diagnosis in June 2015. So, after my … More Christmas, PRRT #4 and Birthdays
Writer, Editor & Blogger
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Encouraging you, because being positive helps everyone.
Oncology Institute Director at Christus Trinity Mother Frances
Living Positively, living with Neuro-endocrine Cancer
Kath Lewis 