This is my first attempt at blogging, so I hope this makes sense!
On the 20th June this year (2015), I got the results of my biopsy that was done on the 12th June, and it delivered a bombshell. In hindsight I should have cottoned on that something was not quite as it should be as I was seeing the oncologist, but for whatever reason that did not register. Maybe not such a bad thing though as it meant that I did not dwell on my appointment beforehand.
Neuroendocrine had been mentioned previously, I knew I had a tumour in the small intestine, and the symptoms associated with it (flushing, bloating, stomach cramps and diarrhoea), but the tests were inconclusive, and cancer had never been mentioned. The biopsy was to check what was going on and if possible remove it, unfortunately though it had metastasised into my liver, so the tumour could not be taken out. On a more positive note, none of the tumours are big and the condition is manageable, although it is not curable.
It is a rare cancer, currently approximately one in every 20,000, and as with most things the symptoms can be associated with many other things, and it is mostly found by accident. I have had symptoms on and off for many years, and now that I have had time to reflect and look back, many things are starting to fall into place.
So as the title says, I am at the start of my journey, a life changing journey, and trying to absorb as much information as I can and come to terms with the cards I have been dealt. I am generally a positive person, and aim to live my life the best way I can, there is a still a lot of sorting out to be done in my head, and adjustments to be made in my life, but it is early days. Luckily I have a very loving and supportive husband, family and friends, together with the multidisciplinary team at the hospital. As well as my first grandchild to look forward to:-)
There is also the NETs Patient Foundation, which was my first port of call for information and support, closely followed by the blogs of the lovely Ronny Allan and his Facebook page , who is also on this journey and has been very informative and supportive too, thank you.