Writing this has reminded me of how far I have come since my diagnosis…. I received my diagnosis on 22nd June 2015, 6 weeks before my grandson was born. Telling family and close friends is never easy, but that made it especially hard. But I was determined to be part of his life for as … More Still Walking Forward: My Life 11 Years After Diagnosis
Today, 4th February, is international ‘Rare Cancer’ day… 11 years and 4 months ago I am sorry to say that I didn’t know that ‘Rare Cancer’ day existed. 11 years and 4 months ago I had never heard of neuroendocrine cancer either, a lot has changed since then. If any of you are familiar with my blogs, although … More 11 Years & 4 months ago My Rare Cancer Journey Began
The longer we can live with neuroendocrine cancer, the more resilient we need to become. ‘Resilient’ … what a great word, but what does it really mean? According to the Oxford English Dictionary: The capacity to withstand or to recover quickly from difficulties; toughness My favourite description though is from the American Psychological Association: Resilience … More Living with Long-Term Uncertainty – 10 years and Counting
7 years and 100 butt jabs later I am still here, who would have thought it. Definitely not me… I have been very lax with my blogs, and I am sorry for being quiet for so long. I have posted a few articles that I have written for Neuroendocrine Cancer UK (NCUK) with a focus on how … More 7 years and 100 Jabs Later
The emotional impact of living with a long term cancer diagnosis can impact our lives in so many different ways, and I think it is important to not be to hard on ourselves. Easier said than done I know… Even though I have been quiet with my usual blogs I have been writing occasional pieces … More Remember – You are Still You💜
As well as dealing with your own diagnosis, and trying to understand what this now means for you as a person, you then have to tell those closest to you and deal with their reactions, which can come in many forms. Not only do you have lot to process; it is a heavy weight to … More Guilty as Charged
This is an article I wrote at the end of last year as part of my role as an ambassador for Neuroendocrine Cancer UK (NCUK). So I thought I would share on here as well. I received my diagnosis of ‘Watch and Wait’ in June 2015, following surgery to try to remove a growth that … More Watching & Waiting – it’s not just about the Cancer
Saturday 20th June is the 5th anniversary of my Neuroendocrine Cancer diagnosis, and I am very thankful that I am still here very much alive and kicking; if somewhat a bit quiet of late. I am shocked to discover that I have not written anything for 6 months, but I just couldn’t bring myself to … More 5th Anniversary of Living with Neuroendocrine Cancer
After my last post, the fast pace and travel continued for a few a weeks more, which has been great fun but also challenging. I have done two more presentations, a coffee morning to raise funds morning for the NET Patient Foundation and some publicity to promote the services of the Penny Brohnn cancer charity. … More Sharing My Story and Getting on Top of the Pain
Time flies when your having fun, and I certainly have been, my feet have hardly hit the ground for longer than a few days since my last blog, hence the title. It’s been mad, literally, talk about making up for lost time… After spending a good few months on my backside before, during and after my … More Trains, Planes & Automobiles and finishing with a bit of Cher
Following on from my last blog there has been a bit of a bigger gap than usual, and I have no valid excuse for that. Life has been jogging along at a nice pace, but the words just wouldn’t come. There have been a few times over the last couple of months that I have … More Riding the Wave and YAY to PRRT
Writer, Editor & Blogger
You don't have to leave your job to travel the world
expressing our experiences through the power of art
A blog about life with Hannah who has a rare genetic syndrome, autism and other stuff...
This is the story of building a cottage , the people and the place. Its a reminder of hope and love.
Our roller coaster ride with parenting, neuroendocrine cancer and life.
Elli's Journey: A glance at a life of tumors, triumph, and treasures
Or, when lightning strikes...twice
Ramblings of a mature student, husband, father & visitor at Christie Hospital for carcinoid cancer
Encouraging you, because being positive helps everyone.
Oncology Institute Director at Christus Trinity Mother Frances
Living Positively, living with Neuro-endocrine Cancer
If you don't suspect it, you can't detect it!
Kath Lewis 